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Contents

Introduction to the Sharing Results Series

About the Authors

Acknowledgments
Introduction
Section 1: Descriptions of Families

Section 2: Study Results—In the Families' Own Words

Section 3: Implications for Service Providers

Section 4: Background and Additional Information About the Study

Section 5: Appendix

References

The full paper (102 pages) in PDF format or in Word format
(for printing purposes)

En Español

 

 

A Look at the Decisions Hispanic Families Make
After the Diagnosis of Deafness


By Annie Steinberg, M.D., Lisa Bain, M.A., Yuelin Li, Ph.D.,
Louise Montoya, M.A., N.C.C., C.S.C., and Vivian Ruperto, B.A.,
of the Children's Seashore House at The Children's Hospital of Philadelphia

Posted December 2002

References

Alvirez, D., & Bean, F. D. (1976). The Mexican-American family. In C. H. Mindel and R. W. Haberstein (Eds.), Ethnic families in America (pp. 271-291). New York: Elsevier.

Arnold, B. R. (Ed.). (1987). Disability, rehabilitation and the Mexican-American. Edinburg, TX: Pan American University.

Becerra, R. M., & Zambrana, R. E. (1985). Methodological approaches to research on Hispanics. Social Work Research and Abstracts, 21(2), 42-49.

Bennett, A. T. (1989). Hispanic families and children in the special education intake process. New York: The Lexington Center.

Charles, C., Gafni, A., & Whelan, T. (1997). Shared decision-making in the medical encounter: What does it mean? (or It takes at least two to tango). Soc Sci Med, 44(5), 681-692.

Cohen, O., Fischgrund, J., & Redding, R. (1990). Deaf children from ethnic, linguistic and racial minority backgrounds: An overview. American Annals of the Deaf, 135(2), 67-73.

Delgado, G. L. (1984). Hearing-impaired children from non-native-language homes. In The Hispanic deaf: Issues and challenges for bilingual special education. Washington, DC: Gallaudet College Press.

Janis, I. L., & Mann, L. (1977). Decision-making: A psychological analysis of conflict, choice, and commitment. New York: Free Press.

Luterman, D. (1987). Deafness in the family. Boston: College-Hill Press.

Meadow-Orlans, K., Mertens, D., Sass-Lehrer, M., & Scott-Olson, K. (1997). Support services for parents of children who are deaf or hard of hearing. Presentation at the Convention of the American Instructors of the Deaf (CAID)/Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) meeting: Pages of the Past…Chapters of the Future, Hartford, CT.

Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis (2nd ed.). Thousand Oaks, CA: Sage Publications.

Mindel, E. D., & Vernon, M. (1971). They grow in silence: The deaf child and his family. Silver Spring, MD: National Association of the Deaf.

National Center for Health Statistics. 1994.

Rodriguez, O., & Santiviago, M. (1991). Hispanic deaf adolescents: A multicultural minority. The Volta Review, 93(5), 89-97.

Schlesinger, H. S. (1972). Diagnostic crisis and its participants. Deafness Annual, Volume II. Silver Spring, MD: Professional Rehabilitation Workers with the Adult Deaf.

Seligman, M., & Darling R. (1989). Ordinary families, special children: A systems approach to childhood disability. New York: Guilford Press.

Stein, R. C. (1983). Hispanic parents' perspectives and participation in their children's special education program: Comparisons by program and race. Learning Disability Quarterly, 6, 432-439.

Steinberg, A. (1991). Issues in providing mental health services to hearing-impaired persons. Hospital and Community Psychiatry, 42(4), 380-389.

Steinberg, A., Davila, J., Collazo, J., Loew, R. C., & Fischgrund, J. E. (1997). "A little sign and a lot of love ... ": Attitudes, perceptions, and beliefs of Hispanic families with deaf children. Qualitative Health Research, 7(2), 202-222.

Torrance, G. W. (1986). Measurement of health state utilities for economic appraisal. Journal of Health Economics, 5, 1-30.

U.S. Census Bureau. (2000). Profile of general demographic characteristics for the United States: 2000. Washington, DC: Author.

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