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A Look at the Decisions Hispanic Families Make
After the Diagnosis of Deafness

By Annie Steinberg, M.D., Lisa Bain, M.A., Yuelin Li, Ph.D.,
Louise Montoya, M.A., N.C.C., C.S.C., and Vivian Ruperto, B.A.,
of the Children's Seashore House at The Children's Hospital of Philadelphia


Posted December 2002

Content

Introduction to the Sharing Results Series
About the Authors
Acknowledgments
Introduction
Section 1: Descriptions of Families

Family 1
Family 2
Family 3
Family 4
Family 5
Family 6
Family 7
Family 8

Section 2: Study Results—In the Families' Own Words

Events and Emotions Surrounding the Diagnosis
Language Differences at Diagnosis and in School
Information Access and Support
Information from Deaf Adults and Other Parents
Family Support
Choosing a Communication Method
Language Preferences
School Choice, Personal Style, and Advocacy
The Impact of Culture
The Role of Church and Faith
Information and Feelings About Cochlear Implants
Families' Satisfaction

Section 3: Implications for Service Providers

Language Difficulties
Information—Family Demographics
Choices in Language, Communication Modes, and Educational Approaches
Culture and Faith

Section 4: Background and Additional Information About the Study

The Hispanic American Population and Deafness
The Decisions of Hispanic Parents of Children with Hearing Losses
Research Methods

Interviews
Surveys
Preference Studies

Data Analysis

Interviews
Surveys
Preference Studies

Results of the Surveys

Subjects (Parents)
Parent Educational Levels
Family Life
Description of Children
Use of Assistive Devices
Training
Communication Mode
Preferred Language in Family
Educational Intervention
Attitude About and Knowledge of Deafness
Use of Resources
Feelings as a Parent of a Deaf or Hard of Hearing Child
Decision Making

Limitations of this Study

Sample Size
Selection Bias
Translations
Researchers' Bias

Section 5: Appendix

Full Family-by-Family Version of this Document

References

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