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Deaf Children With Multiple Disabilities

The combined effect of hearing loss and an accompanying disability presents a unique and complex problem to professionals and parents. Multiple disabilities* create a pattern of problems, different from the problems usually associated with any disability alone. A review of the literature yields surprisingly little specific information on educational programs for such children. The fact that there are many differences among children with multiple disabilities adds to the difficulties of providing appropriate programs. However, there ARE things that can be done.

Who Are Deaf Children with Multiple Disabilities?

A broad interpretation of the term "deaf" with multiple disabilities implies a hearing loss combined with another disability generally needing services beyond those provided for a child with the single disability of hearing loss. Additional disabilities may include mental retardation, learning disabilities, ADD/ADHD, visual impairment, cerebral palsy, orthopedic involvement, or other physical disabilities. Such a definition, however, does not describe any general characteristics of deaf children with additional disabilities.

The differences among deaf children with multiple disabilities are great. They have different accompanying disabilities; they function at different level and have different ways of learning. The level of the hearing loss and of the additional disability influences their level of functioning. In addition, like that of other deaf and hard of hearing children, the age of onset of each disability, and the age when help/appropriate education is received. A further challenge is the age of identification for the deaf children who with moderate multiple disabilities tends to be later than for deaf students. They are often educated as students with a hearing loss for several years before the additional difficulties are recognized. In cases of severe disability, the opposite is true: additional difficulties are recognized early.

This creates a very challenging problem in grouping students and planning and implementing educational programs. Many deaf children with multiple disabilities have often experienced a great deal of failure both because of their disabilities and few teachers have been trained to work with them. Deaf children with multiple disabilities may dislike schooling for this reason, and this may cause behavior problems.

Deaf children with multiple disabilities may also be distractible, hyperactive, have short attention spans and/or memory problems, and need ancillary services such as physical or occupational therapy as well as education. Because of the lack of trained teachers, many programs have not been able to meet the needs of such children. This history of failure makes even more important the need to provide a program, which focuses on the individual needs of each child, breaks skills down into small steps, and provides experience with success.

How Many Deaf Children Have Multiple Disabilities?

Counting deaf children with multiple disabilities is difficult. Not all are in programs for deaf and hard of hearing students. Furthermore, the additional disability may range from mild to moderate to severe. Estimates are that from 20% to 40% of all deaf and hard of hearing children have accompanying disabilities. Statistics collected by the Center for Assessment and Demographic Studies of the Gallaudet Research Institute support this. During the 1996-97 school year, the Center's Annual Survey of Deaf and Hard-of-Hearing Children and Youth reported 50,629 children in special educational programs across the U.S. This number represents approximately 65% of all deaf and hard of hearing children receiving special education in the country. Of the 50,629, 16,386 or 34% were reported as having one or more "educationally significant" disabilities in addition to deafness.

How Are Deaf Children With Multiple Disabilities Identified And Diagnosed?

Schools have a variety of criteria for identifying deaf children with multiple disabilities. Much of the diagnosis is not substantially different from that for deaf or hard of hearing children with any additional disabilities. Developmental checklists may indicate problems in areas such as motor skills, self-help, and social skills. Academic or behavioral difficulties are often a clue. The child's ability to perform adequately in a specific environment (such as independent living skills, carrying out instructions, etc.) is also an important clue. Tests using norms are usually not useful because there are virtually no tests with norms for deaf children with multiple disabilities.

What About Educational Planning?

All children in special education, including those with multiple disabilities, follow a written contract called the Individualized Education Plan (IEP) that is developed by the parents, school personnel, and the child. Deaf children with multiple disabilities require unique educational plans. Usually, teachers of deaf and hard of hearing students are responsible for planning for their students. However, this is not realistic for deaf children with multiple disabilities, because no teacher (no matter how skilled or how well trained) can have the expertise to meet all the needs of all types of deaf children with multiple disabilities. A coordinated effort is required to establish a team responsible for educational planning and instruction. This team should consist of parents, teachers, support personnel, and other professionals in direct contact with the child. A complete pinpointing of the child's skills and weaknesses (academic, physical, and social) should be done, along with an analysis of the settings in which the student is functioning or should be functioning. The goal should be to develop the student's ability to function as independently as possible in the place of residence, the community, the classroom, and eventually on the job.

What Material And Strategies Are Used With Deaf Children With Multiple Disabilities?

No single specific educational technique is appropriate for all deaf children with multiple disabilities. Characteristics of successful programs include the provision of a highly structured program with specific, clearly stated objectives, focusing on the individual needs of each child, and instruction that is step-by-step in nature. Different objectives and instructional procedures are usually needed for each student. Practical experiences in natural environments are important, as are consistent routines. Persistence in an unsuccessful teaching strategy should be avoided. Age-appropriate materials are important, as are motivation of the student and the provision of successful experiences. The emphasis should be on what the student can do in given situations, not on his or hers limitations. Over-learning (going over a skill after it seems to be mastered) is important and much repetition may be necessary. Planning for the transfer of instruction to real life situations is also very important. A successful program for deaf children with multiple disabilities is future-oriented; its goal is to prepare students to function as independently as possible once they leave school. A recent trend is to educate deaf students with multiple disabilities as much as possible with deaf students of the same age who do not have additional disabilities.

While the student is still in school, continuous monitoring of the program and of the student's progress is important to assess the effectiveness of the program for each student.

Suggested Readings

Education of Deaf and Hard of Hearing Students: Deaf Children with multiple Disabilities

This list is one of a series of short reading lists prepared by the National Deaf Education Network at Gallaudet University. The intent of this list is to introduce interested readers to a selection of current and classic literature on this topic. Needless to say, this is an only a portion of a comprehensive bibliography on this topic. There are many selections from this listing, which could be starting points for readers. Your suggestions for future listings are welcome.

Arbor, A. (Fall, 1993). Effects of multifaceted training procedure on the social behaviors of hearing-impaired children with severe language disabilities. Journal of Applied Behavior 3(26) 405.

Arbor, A (Fall 1998). Effects of multifaceted training procedures on the social behaviors of hearing-impaired children with severe language disabilities: A replication. Journal of Applied Behavior Analysis, 3(43)405. 

Campbell, P.H. (1987). The integrated programming team: An approach for coordinating professionals of various disciplines in programs for students with severe and multiple handicaps. Journal of the Association for the Severely Handicapped (JASH), 12, 107-116.

Cherow, E., & Matkin, N.D. (Eds.). (1985). Hearing-impaired children and youth with developmental disabilities. Washington, DC: Gallaudet College Press.

Drinkwater, S. & Demchak, M. (1995). The preschool checklist: Integration of children with severe disabilities. Teaching Exceptional Children, 28 (1), 4-8.

Elliott, R., Powels, A. & Funderburg, R. (1988). Learning disabled hearing impaired students. Teacher survey. The Volta Review, 86, 142-151.

Hardaway, B.D. (1989). Silent Avoidance: The relationship between attitudes and physical impariments among deaf students. [Dissertation Abstract] Dissertation Abstracts Internationl. Vol 50(6-A).

Harris, G.A. (1982). Broken ears, wounded hearts. Washington, DC: Gallaudet College Press.

Huebner, K.M. Prickett, J.G. Welch, T.R &  Joffee, E. (Eds.). (1995). Hand in Hand: Essentials of Communication and Orientation and Mobility for Your Students Who are Deaf-Blind. New York: AFB Press.

Johnson, R.A. ( June, 1990). Creative thinking in mentally retarded deaf adolescents. Psychological Reports 66, 1203-1206.

Jones, T.W. (1993). Best practices in classroom management for deaf students with multiple disabilities. In R.H. Elliott & A.R.Powers (eds.), Deaf and hard-of-hearing students with mild additional disabilities (pp. 1-24). Tuscaloosa: The University of Alabama.

Kates, L., & Schein, J.D. (1980). A complete guide to communication with deafblind persons. Silver Spring, MD: National Association of the Deaf.

Kingsley, EP. (Jun 1996) Sesame Street: Modeling a world that respects every child. Expectional Parents 6(24), 74.

Lang, C. Remington, D. (Feb.1994).  Treatment with propranolol of severe self-injurious behavior in a blind, deaf, retarded adolescent. Journal of the American Academy of Child and Adolescent Psychiatry 2 (33), 265.

Mark, J. (Sept 1986). Joshua, Cara & Anne: Raising a child who is different. Parents, 61(9), 90.

Marschark M. & Clark, D. (1998). Psychological Perspectives on deafness. Erlbaum: Mahwah, NJ.  

Marschark M. (1997).  Raising and educating a deaf child: A comprehensive guide to the choices, controversies, and decisions faced by parents and educators. New York: Oxford University Press.

Mauk, G & Mauk, P. (1998). Considerations, conceptualizations, and challenges in the study of concomitant learning disabilities among children and adolescents who are deaf or hard of hearing.  Journal of Deaf Studies and Deaf Education 3, 15-34.

Orelove, F.P (1991). Educating children with multiple disabities: A transdiciplinary approach. Baltimore, MD: P.H. Brookes Pub Co.

Reiman, J., Bullis, M., Davis C., & Cole, A. (1991). Lower-achieving deaf people: Overview and case study. Volta Review 22 (3), 99-120.

Silverstein, R. (1986) The legal necessity for residential schools serving deaf, blind, and multihandicapped sensory-impaired children. American Annals of the Deaf 131 (2), 99-115.

Sonies, G., & Healy, W. (1974). The deaf mentally retarded. Washington, DC: American Speech and Hearing Association.

Stryker, D.S (1998). Identification of learning disabilities in students who are deaf or hard of hearing: a Bayesian approach. Ann Arbor Mich:

Vernon, M., Boughman, J.A., & Annala, L. (1982). Considerations in diagnosing Usher's Syndrome: RP and hearing loss. Journal of Vision Impairment and Blindness, 76, 258-261.

Wojcit, L. (Dec. 1998). My very special sister. Exceptional Parent, 12(28), 76.

Watkins, S., Clark, T., Strong, C. Barringer, D. (Oct. 1994). The effectiveness of an intervener model of services for young deaf-blind children. American Annals of the Deaf 4(139), 404.

Yount, G.C. (1991). Women who make a difference: Reaching a dark, silent world. Family Circle 1(104), 11.

Resources

Two professional groups relevant to the education of deaf students with multiple disabilities are:

Convention of American Instructors of the Deaf (CAID)
P.O. Box 377
Buford, Texas 76095-0377
(817) 354-8414 V/TTY
Web site: http://www.caid.org/

The Association of Persons with Severe Disabilities (TASH)
29 W. Susquehanna Ave. Suite 210
Balitmore, Maryland
(410) 828-8274
Web site: http://www.tash.org

* Like much in the field of deafness today, terminology is in a state of change. The population of deaf students with multiple disabilities has been given different labels. These include multihandicapped hearing impaired (MHHI), multiple handicapped, additionally disabled deaf, etc. Many children who are labeled deaf-blind (or blind-deaf or severely handicapped) may also be included in the general category of deaf children with multiple disabilities. The terms "multihandicapped" and "multiply handicapped" appear frequently and interchangeably in the literature.

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